THE RHINECTOMY SUPPORT NETWORK

If you have reached this site, you've likely received some pretty alarming and unsettling news, or have recently had a major medical procedure and are looking for community and information to help you cope and move forward. We would like to offer some good news up front - you've found a place that can help. The best way to reach out and find others in your situation quickly may be to visit our Facebook group, where we have active members willing to help and answer questions.

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This is a site for people undergoing and recovering from a rhinectomy, and was created to collect and provide resources for those working through the painful and bewildering process of having their nose partially or fully removed. We are not a large group, and specific information and advice can be hard to come by, so the idea is to create a helpful destination that meets some of the needs.

 

This page is new as of the beginning of 2023, so there is not a lot here yet, but the hope is to add tips and resources from others as I can find and solicit them, and figure out ways to connect people and build a community. Ideally, many or most of the tips here will come from current and former rhinectomy patients.

 

To start, I will post some basic information and links from my own experience, but the intention is to gather much more of a variety: there are many permutations of the diseases and treatments that bring one to search for a page like this, so a broad cross section is the goal.

 

Losing one's nose, or part of it, can be traumatic and terrifying - but it does not have to be done without the support of others who have gone through it already.

 

Let's help each other. Please be in touch if you have something to share.